Cincinnati Children’s Hospital created a new, free mobile app, HeartPedia, that uses three-dimensional, anatomically correct images of the heart to help explain heart defects and repairs to patients and families. The app provides detailed descriptions of a particular defect and has animated videos that describe each defect and repair. Healthcare professionals can use the professionally animated app to switch between normal, defect, and repaired images of the heart, while parents can use it to help explain CHDs to loved ones and friends. App features allow users to zoom in/out and rotate images, view interior and outer planes/cross-sections of the heart, and turn on/off labels of key heart structures.
Nick and Lacey are having a baby!!! We are all tickled.
In a joint scientific statement released last week, the American Heart Association (AHA) and American College of Cardiology (ACC) recommended that healthcare professionals include a 14-point checklist when screening young people aged 12-25 for congenital and genetic heart defects. The statement, published simultaneously in the journals Circulation and the Journal of the American College of Cardiology, noted that initial screening for heart disease using electrocardiograms (ECG) with this age group has not been shown to save lives and should not be mandatory among athletes and non-athletes. Making defibrillators available at athletic fields and public places could help prevent sudden death in the young due to complex, genetic/congenital cardiovascular disease.
The 2014 Adult Congenital Heart Association’s (ACHA) 7th National Conference, Translating Quality of Care into Quality of Life, offers the unique opportunity to unite the adult congenital heart community – patients, family members, researchers, and healthcare providers – in one location to share the best in adult congenital heart defect research and resources. This year’s conference is scheduled for September 5-7 in Chicago, Illinois. Registration is open and more information can be found on the ACHA Website.
The Center for Health Care Transition Improvement – Got Transition recently released The Six Core Elements of Health Care Transition (2.0), which define components of transition support and are based on the clinical report, “Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home“, developed by the AAP (led by the Council on Children with Disabilities), the American Academy of Family Physicians, and the American College of Physicians. Three transition tool packages are available for: 1) practices serving youth who will transition out of pediatric care into adult care; 2) practices serving youth who will remain with the same provider but need to transition to adult-focused care; and 3) practices accepting new young adults into adult care. Each package includes sample tools that are customizable and available for download.
The Centers for Disease Control and Prevention (CDC) launched a new Website on congenital heart defects (CHD). The new site provides information and resources for individuals, families, health professionals and others about CHD basics, screening, research and tracking, data and statistics, and specific types of heart defects. The Website features answers to common questions about CHDs, information about how the heart works, the latest CHD news and scientific articles, and an updated look and feel.
Nick celebrated his 23th year with a heart transplant this week. He says the longest living made it 31 years and died of old age. He wants to surpass that and more. I want that also.
Thanks everyone for the prayers and support. And thanks to the doctors and nurses that have cared for him and most of all to the donor and donor family.
Nick and Lacey had their first wedding shower last Sunday. It was wonderful. Ginger, Carole and Chrissy did a wonderful job and everyone seemed to have a great time. I know Lacey was tickled over her gifts. A bride always enjoys being the center of attention.
The wedding plans are moving along. On my front I have my dress and am working on getting my shoes. We have a busy and exciting next few months.