Nick had his annual check up recently. This was the first visit he has made a trip to Atlanta to the doctor without me. Lacey went with him. How can I say it, yes it was nice not to get out of bed a 5:30 and drive in the dark. To tell the truth I was on the phone and texting throughtout his appointment. I still had to know what was going on.
He was pronoticed perfect. In fact, he was a doctor not much older than Nick who was amazed he was doing so well. Lacey liked the doctor also. Said he was good looking.
My little boy has grown up. And it is good.
Increased neonatal mortality was found in infants with hypoplastic left heart syndrome (HLHS) born far from a cardiac surgical center (CSC), according to a new study published in the journalCirculation (password required). In a first of its kind study, nine years of data (1999-2007) from the Texas Birth Defects Registry was used to examine the effect of calculated driving time from birth center to CSC on mortality among infants with HLHS. The study results suggest that improving prenatal diagnosis, which allows planning of delivery near a large volume CSC, may significantly improve survival in infants with HLHS. The study abstract summarizes key findings and conclusions.
Collaborators from the American Society of Echocardiography, the Society for Cardiovascular Magnetic Resonance and the Society for Pediatric Radiology have developed guidelines on imaging patients with repaired tetralogy of Fallot, a childhood heart defect. The guidelines describe the role of diagnostic modalities such as cardiovascular MR and echocardiography in the monitoring and management of patients with the condition. Theguidelines are published in the Journal of the American Society of Echocardiography.
Feburary is Heart Month. Wear red in support of heart health.
Study Shows High Survival Rates for Patients with Pediatric Heart Transplant
Findings from a study presented at the annual meeting of the Society of Thoracic Surgeons show that, of pediatric patients who underwent heart transplant procedures before the age of 18, 54% lived for at least 15 years after the surgery. Of these survivors, 82.5% were still alive and had a good heart function during their most recent follow-up visit. The study followed 337 pediatric patients who had their procedures performedat Loma Linda Children’s Hospital between 1985 and 1998. In comparison, adult survival rate after a heart transplant is 10 years.
January is Birth Defects Prevention Month’ is in full swing! Now is the time to focus efforts and help raise awareness about preventing birth defects. TheNational Birth Defects Prevention Network Education and Outreach Committee has developedmaterials and resources on healthy lifestyles, preconception health, and infections and immunizations to assist state program staff and others interested in promoting birth defects prevention. The goal for 2014 campaign is to continue to increase awareness that birth defects are “Common, Costly and Critical” and to offer actionable steps that can be taken by professionals, community groups, and the public to prevent birth defects.
The journal Prenatal Diagnosis has published a new Centers for Disease Control and Prevention (CDC) study that focuses on mothers of babies with acongenital heart defect (CHD). The study looked at the timing of when mothers receive their baby’s CHD diagnosis. Researchers from CDC and the National Birth Defects Prevention Study (NBDPS) found that 15% of women reported that they first learned about their baby’s congenital heart defect (CHD) during pregnancy. Many times it is critical that a baby receives their CHD diagnosis during the mother’s pregnancy to reduce serious complications after the baby is born. These research findings will help healthcare providers identify opportunities to increase the number of women who are offered and have access to prenatal screening for CHDs during pregnancy.
I saw the cardiologist today. I have to continue on the meds, be on a Holter monitor for a month and lose weight. After a month, depending on what the monitor shows, I may have to go the rhythm doc. So we’ll see. If I wasn’t depressed before I may be now. Life changes are coming at me like a train.