Celebrating 23 years with a Heart Transplant

HeartNick celebrated his 23th year with a heart transplant this week. He says the longest living made it 31 years and died of old age. He wants to surpass that and more. I want that also.

Thanks everyone for the prayers and support. And thanks to the doctors and nurses that have cared for him and most of all to the donor and donor family.

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Wedding Showers

Nick and Lacey had their first wedding shower last Sunday. It was wonderful. Ginger, Carole and Chrissy did a wonderful job and everyone seemed to have a great time. I know Lacey was tickled over her gifts. A bride always enjoys being the center of attention.

The wedding plans are moving along. On my front I have my dress and am working on getting my shoes. We have a busy and exciting next few months.

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Zach’s Surgery

Zach had a mole removed from the back of his neck a month ago. It came back a malignant melanoma.  He had to have surgery to remove two inches in each direction around the site and take out some lymph nodes. After waiting to see a surgeon in Cartersville, working around the bad weather every two week and finding out that he really needed to go to Emory, he had the surgery done last Wednesday.

It was far more than I imagined. He has an incision from ear to ear on the back of his neck. Nine inches. But he also has on from behind his right ear to his collar bone. Six inches. He looks awful. The doctor did prepare me that he might have to take a node out from under his arm. That didn’t happen but it will have to be watched. We will not know for another two weeks if the cancer has spread.

It hasn’t been much fun at our house this week.

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Nick’s Check Up

Nick had his annual check up recently. This was the first visit he has made a trip to Atlanta to the doctor without me. Lacey went with him. How can I say it, yes it was nice not to get out of bed a 5:30 and drive in the dark. To tell the truth I was on the phone and texting throughtout his appointment. I still had to know what was going on.

He was pronoticed perfect. In fact, he was a doctor not much older than Nick who was amazed he was doing so well. Lacey liked the doctor also. Said he was good looking.

My little boy has grown up. And it is good.

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Infants Born with Hypoplastic Left Heart Syndrome Benefit from Proximity of Birth Hospital to Cardiac Surgical Center

Increased neonatal mortality was found in infants with hypoplastic left heart syndrome (HLHS) born far from a cardiac surgical center (CSC), according to a new study published in the journalCirculation (password required). In a first of its kind study, nine years of data (1999-2007) from the Texas Birth Defects Registry was used to examine the effect of calculated driving time from birth center to CSC on mortality among infants with HLHS. The study results suggest that improving prenatal diagnosis, which allows planning of delivery near a large volume CSC, may significantly improve survival in infants with HLHS. The study abstract summarizes key findings and conclusions.

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Heart Awareness Week

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Groups Release Guidelines for Imaging of Childhood Heart Defect

Collaborators from the American Society of Echocardiography, the Society for Cardiovascular Magnetic Resonance and the Society for Pediatric Radiology have developed guidelines on imaging patients with repaired tetralogy of Fallot, a childhood heart defect. The guidelines describe the role of diagnostic modalities such as cardiovascular MR and echocardiography in the monitoring and management of patients with the condition. Theguidelines are published in the Journal of the American Society of Echocardiography.

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I’m Wearing Red. Are You?

Feburary is Heart Month. Wear red in support of heart health.

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What I Already Knew About Nick

Study Shows High Survival Rates for Patients with Pediatric Heart Transplant

Findings from a study presented at the annual meeting of the Society of Thoracic Surgeons show that, of pediatric patients who underwent heart transplant procedures before the age of 18, 54% lived for at least 15 years after the surgery. Of these survivors, 82.5% were still alive and had a good heart function during their most recent follow-up visit.  The study followed 337 pediatric patients who had their procedures performedat Loma Linda Children’s Hospital between 1985 and 1998. In comparison, adult survival rate after a heart transplant is 10 years.

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National Heart Month

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