New Wal-Mart Manager

Nick is in the Wal-Mart Managers program. We are proud to have him employed. Mr. Wal-Mart will soon be a co-manager at a local store.

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Share your story with CDC

 

CDC is hoping to increase visibility and awareness of birth defects by sharing personal stories of individuals and families affected by them. Through these stories, CDC is trying to present a face behind the numbers, demonstrate how these conditions impact people’s lives, and emphasize why public health research on birth defects is important. Stories will be featured on the CDC website and social media channels. CDC is looking for stories on different conditions from different perspectives in an effort to highlight a variety of experiences. The deadline to submit stories (including the photos and signed waivers) is Monday, August 31st. Families can submit stories by emailing BDstories@cdc.gov.

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Lifelong care for Adolescents and Adults with a CHD

As people born with congenital heart defects (CHD) age, there are a variety of occurring issues that are not often well understood. These include your emotional and social needs; the benefits of exercise; living long enough to develop new health issues unrelated to your CHD; end of life discussions; and issues for women such as pregnancy and birth control. Visit chphc.org to learn more about living with a CHD.

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New Research: Use of Special Education Services among Children with Congenital Heart Defects

 

New CDC study findings in the August 17 issue of Pediatrics show that children with congenital heart defects (CHDs) received special education services more often than children without birth defects. These findings highlight the need for special education services and the importance of developmental screening for all children with CHDs. More information including a summary of the key findings are available on the CDC.gov/NCBDDD web site.

 

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Elevated Blood Pressure in Young Adults Associated with Middle-Age Heart Issues

Young adults who had blood pressure that was elevated but still within normal range for long periods of time were more likely to show signs of cardiac dysfunction in middle age, according to a study published June 22 in the Journal of the American College of Cardiology. Researchers said their work suggests young adults should take steps to reduce elevated blood pressure by reducing sodium intake, maintaining an ideal body weight, being physically active and adhering to any recommended medical treatments for high blood pressure.

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Newest Book on the shelf at Barnes and Noble

WWIIbooks

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My Mother’s Day Gift

rehersal dinner

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Symposium – Congenital Heart Disease

June 26-27, 2015 (Orlando, FL)

In this one-of-a kind national congenital heart disease (CHD) Symposium, parents, caregivers and family members will learn the latest information on caring for their CHD child and new medical treatments to help them as they grow. Speakers from around the nation will update families on innovations and treatment for CHD. New this year a camp for CHD kids and siblings will offer concurrent programming with activities where kids will learn leadership, service and creative problem solving. Registration will remain open. To learn more please visit www.mendedlittlehearts.org or call 1-888-HEART99.

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Must See Video

This is a must see CNN video about babies and their heart surgery. Shocking!

http://www.cnn.com/2015/06/01/health/st-marys-medical-center/index.html

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One of the longest living Heart Transpants Dies

Check this out. He live 30 years with two different hearts. Nick is at 24 with the same heart.

http://www.lohud.com/story/news/local/rockland/2015/04/23/jason-blatter-pediatric-heart-transplant/26262899/

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