Elevated Blood Pressure in Young Adults Associated with Middle-Age Heart Issues

Young adults who had blood pressure that was elevated but still within normal range for long periods of time were more likely to show signs of cardiac dysfunction in middle age, according to a study published June 22 in the Journal of the American College of Cardiology. Researchers said their work suggests young adults should take steps to reduce elevated blood pressure by reducing sodium intake, maintaining an ideal body weight, being physically active and adhering to any recommended medical treatments for high blood pressure.

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Newest Book on the shelf at Barnes and Noble


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My Mother’s Day Gift

rehersal dinner

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Symposium – Congenital Heart Disease

June 26-27, 2015 (Orlando, FL)

In this one-of-a kind national congenital heart disease (CHD) Symposium, parents, caregivers and family members will learn the latest information on caring for their CHD child and new medical treatments to help them as they grow. Speakers from around the nation will update families on innovations and treatment for CHD. New this year a camp for CHD kids and siblings will offer concurrent programming with activities where kids will learn leadership, service and creative problem solving. Registration will remain open. To learn more please visit www.mendedlittlehearts.org or call 1-888-HEART99.

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Must See Video

This is a must see CNN video about babies and their heart surgery. Shocking!


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One of the longest living Heart Transpants Dies

Check this out. He live 30 years with two different hearts. Nick is at 24 with the same heart.


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Please Comment

The last day to comment on the policy regarding transplant surgeons and physicians is tomorrow. If you haven’t done so I ask you to please consider doing so.


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Report on congenital heart surgery outcomes is made available to public


The Society of Thoracic Surgeons has made public its first report of pediatric and congenital heart surgery outcomes from the Congenital Heart Surgery Database. The report included four-year observed, expected and risk-adjusted center-level surgery-related mortality rates for the aggregate of all patients at the 25 sites who agreed to publicly report.


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Please read and comment

Dear transplant families and friends,

 I am writing to you today as a parent of a pediatric transplant patient to request your help in advancing the care of pediatric transplant patients across the country.  The United Network for Organ Sharing, or UNOS, is the organization that manages the national organ allocation system and distributes organs to transplant centers like ours.  One of their tasks is to define which surgeons and physicians are eligible to lead a transplant center.  Currently, every transplant center has a surgeon and physician who has been deemed qualified by UNOS criteria to run that program and to transplant that specific organ (heart, lung, liver, kidney, etc).  However, despite several efforts in the past to define pediatric transplantation as a specialty separate from adult transplantation, UNOS has been unable to develop such criteria.  Therefore, as it stands today, a pediatric transplant (transplant in a child <18 years of age) may be done by a surgeon and managed by a physician who have absolutely no pediatric experience or training.  They may even transplant a 1 year old even though they have never cared for a one year old before! 

On January 27, 2015, UNOS made a policy proposal available for public comment that aims to correct this major flaw in the system. I would ask for your help with getting this proposal approved.  Please review the public comment proposal at the website below and let UNOS know what you think.  I would strongly encourage you to support the proposal as it is a major step towards assuring that all children across the country receive transplant care from physicians and surgeons who have pediatric specific transplant training.   


 Thank you for your help in this important matter.”

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“Little Hats, Big Hearts” Generating an Over-the-Top Response

red hats4

Volunteers for the American Heart Association and Mended Little Hearts are knitting red hats for all babies born in February at participating hospitals to raise awareness of congenital heart defects. They hope to have as many babies as possible in February wear red knit hats so there more people are aware that some babies are born with heart disease.


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