Category Archives: Uncategorized

Congeital Heart Disease Symposium

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Summer Travel Tips from the Adult Congenital Heart Association

There are so many things to do when preparing for a trip, but add a congenital heart defect (CHD) to the equation and the to-do list grows. To help alleviate some of this stress, the Adult Congenital Heart Association (ACHA) … Continue reading

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Congenital Heart Disease Clinic and Provider Directory

The congenital heart disease (CHD) clinic directory is an online directory on American College of Cardiology’s (ACC) CardioSmart Website. The directory is designed to help patients, families and providers find specialty CHD care. With nearly 200 CHD centers and practices … Continue reading

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Fewer than 50% of adolescents with heart problems are prepared for transition to adult care

The article “Preparing adolescents with heart problems for transition to adult care, 2009-2010 National Survey of Children with Special Health Care Needs” was published online by Congenital Heart Disease on Friday, May 19. The authors recognize the increased morbidity and … Continue reading

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Jimmy Kimmel’s Heart Child

In April, Jimmy and his wife Molly welcomed their second child together, William ‘Billy’ Kimmel. At three days old, Billy had successful open heart surgery at Children’s Hospital Los Angeles and is now home with his family. Jimmy opens up … Continue reading

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Congenital Heart Disease Clinic and Provider Directory

The congenital heart disease (CHD) clinic directory is an online directory on American College of Cardiology’s (ACC) CardioSmart Website. The directory is designed to help patients, families and providers find specialty CHD care. With nearly 200 CHD centers and practices … Continue reading

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Mended Little HeartGuide, a Comprehensive Guidebook for Families of Kids with Congenital Heart Defects

The digital Mended Little HeartGuide was developed to empower families to feel confident as they care for their child with congenital heart disease. The CHD journey can be frightening and challenging, but parents and caregivers can do very well if … Continue reading

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Balancing Parenting and your Congenital Heart Defect

A key issue in parenting when you have congenital heart defect (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

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Guided Questions Tool—Important Questions for Families to Ask the Cardiac Team

Thanks to new and better treatments children with a congenital heart defect (CHD) have better chances of survival. The Pediatric Congenital Heart Association has developed a series of questions that families can use when talking with their cardiac care team. … Continue reading

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Congenital Heart Defect Awareness Week

February 7-14, 2017 is Congenital Heart Defect Awareness Week! Congenital Heart Defect Awareness Week promotes awareness about congenital heart defects (CHDs). CHDs are the most common birth defect – affecting nearly one in 100 births every year in the United … Continue reading

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