Category Archives: Uncategorized

“Little Hats, Big Hearts” Generating an Over-the-Top Response

Volunteers for the American Heart Association and Mended Little Hearts are knitting red hats for all babies born in February at participating hospitals to raise awareness of congenital heart defects. They hope to have as many babies as possible in … Continue reading

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Nick’s Heart Cath

Nick had his bi-annual cath yesterday. He got a good report. The only concern is that his coronaries had narrowed a little. This is to be expected after almost 24 years post transplant. Plan is to put him on medicine that … Continue reading

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New Affordable Care Act Fact Sheets for Families

Created by the National Center for Medical Home Implementation and the Catalyst Center, these four fact sheets highlight provisions of the Affordable Care Act which benefit children and youth with special health care needs. Each fact sheet is written in … Continue reading

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January is Birth Defects Prevention Month

Birth defects are common, costly and critical. Every 4 ½ minutes a baby is born with a major birth defect. Become an active participant in Birth Defects Prevention Month and join a nationwide effort to raise awareness of birth defects, … Continue reading

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Healthcare Provider Understanding of CHD Coping Skills for Adolescent Patients and Their Parents

A recent study in the Journal of Cardiovascular Nursing evaluated and compared adolescent patients’ and their parents’ coping strategies and knowledge of congenital heart disease (CHD). While parents demonstrated significantly higher knowledge about CHD than their children, the authors noted … Continue reading

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New Heart for Hunter

A young man Hunter Cain is waiting on a new heart.  Check out the website and think about helping. www.cotaforhunterc.com  

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New, Free Mobile App Educates about Congenital Heart Defects

  Cincinnati Children’s Hospital created a new, free mobile app, HeartPedia, that uses three-dimensional, anatomically correct images of the heart to help explain heart defects and repairs to patients and families. The app provides detailed descriptions of a particular defect … Continue reading

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Big News

Nick and Lacey are having a baby!!! We are all tickled.

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New Heart Screening Recommendations for People Age 12-25

In a joint scientific statement released last week, the American Heart Association (AHA) and American College of Cardiology (ACC) recommended that healthcare professionals include a 14-point checklist when screening young people aged 12-25 for congenital and genetic heart defects. The … Continue reading

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ACHA National Conference, September 5-7, 2014

The 2014 Adult Congenital Heart Association’s (ACHA) 7th National Conference, Translating Quality of Care into Quality of Life, offers the unique opportunity to unite the adult congenital heart community – patients, family members, researchers, and healthcare providers – in one … Continue reading

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