Category Archives: Uncategorized

Congenital Heart Defect Awareness Week

February 7-14, 2017 is Congenital Heart Defect Awareness Week! Congenital Heart Defect Awareness Week promotes awareness about congenital heart defects (CHDs). CHDs are the most common birth defect – affecting nearly one in 100 births every year in the United … Continue reading

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Comments Being Accepted Regarding Candidate Metrics for Young Adults with CHD

The American College of Cardiology’s Adult Congenital and Pediatric Cardiology Section is inviting congenital heart disease community members to comment on two proposed candidate metrics aimed at ensuring young adults with congenital heart disease are appropriately guided into life- long … Continue reading

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New AHA guidance on managing pregnancy in CHD patients

The American Heart Association published the scientific statement “Management of Pregnancy in Patients with Complex Congenital Heart Disease” (Circulation, 2017). The statement acknowledges that for many women with complex congenital heart disease, carrying a pregnancy carries a moderate to high … Continue reading

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Reproductive health for young women with congenital heart defects

Topic #2 of 6: Planning a Healthy Pregnancy (sharable version attached) Women living with a congenital heart defect (CHD) can have healthy pregnancies. Plan ahead and follow these steps. See health care professionals who treat pregnant women with CHDs. You … Continue reading

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CDC: Birth defect-related hospitalization in US cost $23B in 2013

CDC researchers found that the cost of hospitalizations linked to birth defects in the US totaled $22.9 billion or 5.2% of total health care costs in 2013, while representing only 3% of all hospitalizations. The findings were published in the … Continue reading

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Birth Defects

Birth defects are the leading cause of infant death in the United States, accounting for about 1 in 5 infant deaths. In this study, researchers looked at the number of infant deaths related to birth defects per 1,000 live births … Continue reading

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Mended Little Hearts: Rock Your Scar Contest

Get your cameras out because for the fourth year in a row, Mended Little Hearts is hosting its Rock Your Scar (#RockYourScar) photo contest and awareness campaign. For many teens and tweens, it is the very first time they have seen … Continue reading

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January is Birth Defects Prevention Month

Birth defects are common, costly, and critical. Every 4 ½ minutes a baby is born with a major birth defect in the United States. Become an active participant in National Birth Defects Prevention Month by joining the nationwide effort to … Continue reading

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Reproductive health for young women with congenital heart defects

Topic #2 of 6: Preconception Counseling (sharable version attached) Pregnancy is hard on the heart. However, most women with a congenital heart defect (CHD) are able to have healthy pregnancies if they choose. If you have a CHD and are … Continue reading

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Reproductive health for young women with congenital heart defects

Contraception When you have a congenital heart defect (CHD), choosing the right type of birth control can mean the difference between protecting your heart and developing serious health complications.   Many oral birth control medications contain a hormone called estrogen, … Continue reading

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