Category Archives: Uncategorized

AAP Issues Recommendations on Informed Consent in Pediatric Health Care

The American Academy of Pediatrics released a policy statement and technical report in Pediatrics recommending pediatricians use age-appropriate discussions to involve preteen and teen patients in medical decision-making; be familiar with state laws in case of treatment refusals; engage in … Continue reading

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Access to Care: Are We Ready for the Surge in CHD Survivors?

The CHPHC has developed a new factsheet regarding access to care for congenital heart defect (CHD) survivors. CHD represents a medical challenge that spans the life of a patient from birth through adulthood. With increased survival, the number of adults … Continue reading

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New Study Estimates the Number of People with Congenital Heart Defects Living in the United States

Thanks to advancements in medical and surgical care, more people are living longer with congenital heart defects (CHD) than ever before. As people live longer, more of them require specialized ongoing care. However, there is no current information about the … Continue reading

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Balancing Parenting and Congenital Heart Disease

A key issue in parenting when you have congenital heart disease (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

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Nick’s Story on Fox5 news

  Check out Nick’s story on Fox5 news http://www.fox5atlanta.com/news/most-popular/153343129-story    

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The CHPHC celebrates parents with lives affected by CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). Read the messages that CHPHC members and CHD … Continue reading

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Parenting a Child with CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). The CHPHC offers the message below to all … Continue reading

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Heart Transplant Party-25 years and counting

Nick doctors and nurse and heart friend

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25 Years with a Heart Transplant

Nick and Dr. Kirk Kanter is heart surgeon.

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Congenital Heart Disease Clinic and Provider Directory

The congenital heart disease (CHD) clinic directory is an online directory on American College of Cardiology’s (ACC) CardioSmart Website. The directory is designed to help patients, families and providers find specialty CHD care. With nearly 200 CHD centers and practices … Continue reading

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