Category Archives: Uncategorized

The CHPHC celebrates parents with lives affected by CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). Read the messages that CHPHC members and CHD … Continue reading

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Parenting a Child with CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). The CHPHC offers the message below to all … Continue reading

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Heart Transplant Party-25 years and counting

Nick doctors and nurse and heart friend

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25 Years with a Heart Transplant

Nick and Dr. Kirk Kanter is heart surgeon.

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Congenital Heart Disease Clinic and Provider Directory

The congenital heart disease (CHD) clinic directory is an online directory on American College of Cardiology’s (ACC) CardioSmart Website. The directory is designed to help patients, families and providers find specialty CHD care. With nearly 200 CHD centers and practices … Continue reading

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World Birth Defects Day: Joining Together Across the Globe for Birth Defects Awareness

Birth defects are common, costly, and critical. Worldwide, approximately 1 in 100 babies are born every year with a major heart defect, while every 1 in 300 births result in a severe heart defect. For the second consecutive year, Congenital … Continue reading

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Bust the Congenital Heart Defect Repair Myth

In the United State, approximately 40,000 babies (1 in 110) per year are born with a congenital heart defect (CHD). Following surgery, the oft-used words of “fixed” or “repaired” lead to the false assumptions. Children with CHD are more likely … Continue reading

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February 7-14 is Congenital Heart Defect Awareness Week

Did you know congenital heart defects (CHDs) affect nearly 1 in 100 births every year in the United States and are the most common type of birth defect? CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) has a number … Continue reading

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Proposed changes to heart allocation policy

 You can access the recording of a presentation of those changes here: https://youtu.be/93E9v5_ULxw Please feel free to share this with anyone else who might be interested.

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January is National Birth Defects Prevention Month!

January is National Birth Defects Prevention Month! Join us in this nationwide effort to raise awareness of birth defects, their causes, and their impact!

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