Category Archives: Uncategorized

Reproductive health for young women with congenital heart defects

Contraception When you have a congenital heart defect (CHD), choosing the right type of birth control can mean the difference between protecting your heart and developing serious health complications.   Many oral birth control medications contain a hormone called estrogen, … Continue reading

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Help parents form positive parent-child relationships

“Essentials for Parenting Toddlers and Preschoolers” is a free, online resource developed by the CDC to help parents learn skills that form the foundation of a positive parent-child relationship. Skills focus on encouraging good behavior, while decreasing misbehavior using proven … Continue reading

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Closing the Gaps in Public Health Knowledge About Congenital Heart Defects Across the Lifespan

In the article “Databases for Congenital Heart Public Health Studies Across the Lifespan (JAHA, published online October, 26, 2016), the authors representing the Congenital Heart Public Health Consortium (CHPHC) advocate that anyone planning studies to address public health knowledge gaps … Continue reading

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New Online Library of Milestones in Action for Parents & Caregivers

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) Learn the Signs. Act Early program just released a new online library of over 250 photos and videos showcasing early childhood developmental milestones from 2 months to 5 years of … Continue reading

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Hope as Therapy: How Does Peer Support for Patients Affect Outcomes?

Through the article “Hope as Therapy: How Does Peer Support for Patients Affect Outcomes?” (Cardiovascular Business, October 4, 2016) Mended Hearts Executive Director, Michele Packard-Milam, CAE, discusses the powerful and practical opportunities that peer support models present for injecting hope … Continue reading

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AAP Issues Recommendations on Informed Consent in Pediatric Health Care

The American Academy of Pediatrics released a policy statement and technical report in Pediatrics recommending pediatricians use age-appropriate discussions to involve preteen and teen patients in medical decision-making; be familiar with state laws in case of treatment refusals; engage in … Continue reading

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Access to Care: Are We Ready for the Surge in CHD Survivors?

The CHPHC has developed a new factsheet regarding access to care for congenital heart defect (CHD) survivors. CHD represents a medical challenge that spans the life of a patient from birth through adulthood. With increased survival, the number of adults … Continue reading

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New Study Estimates the Number of People with Congenital Heart Defects Living in the United States

Thanks to advancements in medical and surgical care, more people are living longer with congenital heart defects (CHD) than ever before. As people live longer, more of them require specialized ongoing care. However, there is no current information about the … Continue reading

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Balancing Parenting and Congenital Heart Disease

A key issue in parenting when you have congenital heart disease (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

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Nick’s Story on Fox5 news

  Check out Nick’s story on Fox5 news http://www.fox5atlanta.com/news/most-popular/153343129-story    

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