Category Archives: Uncategorized

Congenital Heart Disease Clinic and Provider Directory

The congenital heart disease (CHD) clinic directory is an online directory on American College of Cardiology’s (ACC) CardioSmart Website. The directory is designed to help patients, families and providers find specialty CHD care. With nearly 200 CHD centers and practices … Continue reading

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Mended Little HeartGuide, a Comprehensive Guidebook for Families of Kids with Congenital Heart Defects

The digital Mended Little HeartGuide was developed to empower families to feel confident as they care for their child with congenital heart disease. The CHD journey can be frightening and challenging, but parents and caregivers can do very well if … Continue reading

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Balancing Parenting and your Congenital Heart Defect

A key issue in parenting when you have congenital heart defect (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

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Guided Questions Tool—Important Questions for Families to Ask the Cardiac Team

Thanks to new and better treatments children with a congenital heart defect (CHD) have better chances of survival. The Pediatric Congenital Heart Association has developed a series of questions that families can use when talking with their cardiac care team. … Continue reading

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Congenital Heart Defect Awareness Week

February 7-14, 2017 is Congenital Heart Defect Awareness Week! Congenital Heart Defect Awareness Week promotes awareness about congenital heart defects (CHDs). CHDs are the most common birth defect – affecting nearly one in 100 births every year in the United … Continue reading

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Comments Being Accepted Regarding Candidate Metrics for Young Adults with CHD

The American College of Cardiology’s Adult Congenital and Pediatric Cardiology Section is inviting congenital heart disease community members to comment on two proposed candidate metrics aimed at ensuring young adults with congenital heart disease are appropriately guided into life- long … Continue reading

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New AHA guidance on managing pregnancy in CHD patients

The American Heart Association published the scientific statement “Management of Pregnancy in Patients with Complex Congenital Heart Disease” (Circulation, 2017). The statement acknowledges that for many women with complex congenital heart disease, carrying a pregnancy carries a moderate to high … Continue reading

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Reproductive health for young women with congenital heart defects

Topic #2 of 6: Planning a Healthy Pregnancy (sharable version attached) Women living with a congenital heart defect (CHD) can have healthy pregnancies. Plan ahead and follow these steps. See health care professionals who treat pregnant women with CHDs. You … Continue reading

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CDC: Birth defect-related hospitalization in US cost $23B in 2013

CDC researchers found that the cost of hospitalizations linked to birth defects in the US totaled $22.9 billion or 5.2% of total health care costs in 2013, while representing only 3% of all hospitalizations. The findings were published in the … Continue reading

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Birth Defects

Birth defects are the leading cause of infant death in the United States, accounting for about 1 in 5 infant deaths. In this study, researchers looked at the number of infant deaths related to birth defects per 1,000 live births … Continue reading

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