Category Archives: Uncategorized

February 7-14 is Congenital Heart Defect Awareness Week

Did you know congenital heart defects (CHDs) affect nearly 1 in 100 births every year in the United States and are the most common type of birth defect? CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) has a number … Continue reading

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Proposed changes to heart allocation policy

 You can access the recording of a presentation of those changes here: https://youtu.be/93E9v5_ULxw Please feel free to share this with anyone else who might be interested.

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January is National Birth Defects Prevention Month!

January is National Birth Defects Prevention Month! Join us in this nationwide effort to raise awareness of birth defects, their causes, and their impact!

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IDEA for Children with Special Educational Needs

Individuals With Disabilities Education Act (IDEA) for Children With Special Educational Needs—a clinical report from the American Academy of Pediatrics—provides guidance to ensure that every child in need receives the early intervention and special education services to which he or … Continue reading

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January is Birth Defects Awareness Month

Congenital Heart Defects (CHD) and other birth defects are common, costly, and critical. Join the effort to raise awareness of birth defects, their causes and their impact. Here are the facts: What is a congenital heart defect? • Congenital heart … Continue reading

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Calling all Artists

Raise CHD Awareness – Design a Tie! The American College of Cardiology (ACC) is looking for a new tie design and would like to use this effort to raise awareness for Congenital Heart Disease. As such, the ACC is hosting … Continue reading

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Pediatric Medical Home Infographics Now Available

  Download your copy of new infographics on pediatric medical home and practice transformation today! The infographics raise awareness of how children are unique; rapid changes taking place in pediatric practice; and how pediatricians and other child health professionals can … Continue reading

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Survival of Children With Hypoplastic Left Heart Syndrome

Results from the recent population-based study (Pediatrics, October 2015) indicate that long-term survival of children with hypoplastic left heart syndrome (HLHS) has improved from 0% for those born 1979-1894 to 52% for those born 1992-2005 who had surgery. This population-based … Continue reading

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Comprehensive Guidebook for Families of Kids with Congenital Heart Defects

Introducing the Mended Little HeartGuide, a Comprehensive Guidebook for Families of Kids with Congenital Heart Defects The digital Mended Little HeartGuide is available. The guide was developed to empower families to feel confident as they care for their child with … Continue reading

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Nick’s New Heart now on ibooks

Nick’s New Heart (AppleID: 978003869) is now available on iBooks. https://itunes.apple.com/us/book/nicks-new-heart/id978003869?ls=1&mt=11

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