Category Archives: Uncategorized

Healthcare Provider Understanding of CHD Coping Skills for Adolescent Patients and Their Parents

A recent study in the Journal of Cardiovascular Nursing evaluated and compared adolescent patients’ and their parents’ coping strategies and knowledge of congenital heart disease (CHD). While parents demonstrated significantly higher knowledge about CHD than their children, the authors noted … Continue reading

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New Heart for Hunter

A young man Hunter Cain is waiting on a new heart.  Check out the website and think about helping. www.cotaforhunterc.com  

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New, Free Mobile App Educates about Congenital Heart Defects

  Cincinnati Children’s Hospital created a new, free mobile app, HeartPedia, that uses three-dimensional, anatomically correct images of the heart to help explain heart defects and repairs to patients and families. The app provides detailed descriptions of a particular defect … Continue reading

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Big News

Nick and Lacey are having a baby!!! We are all tickled.

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New Heart Screening Recommendations for People Age 12-25

In a joint scientific statement released last week, the American Heart Association (AHA) and American College of Cardiology (ACC) recommended that healthcare professionals include a 14-point checklist when screening young people aged 12-25 for congenital and genetic heart defects. The … Continue reading

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ACHA National Conference, September 5-7, 2014

The 2014 Adult Congenital Heart Association’s (ACHA) 7th National Conference, Translating Quality of Care into Quality of Life, offers the unique opportunity to unite the adult congenital heart community – patients, family members, researchers, and healthcare providers – in one … Continue reading

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Transitioning to Adult Health Care: Practice Tools & New Website

The Center for Health Care Transition Improvement – Got Transition recently released The Six Core Elements of Health Care Transition (2.0), which define components of transition support and are based on the clinical report, “Supporting the Health Care Transition from … Continue reading

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Nick’s Wedding Pictures

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CDC Launches New Website on CHD

  The Centers for Disease Control and Prevention (CDC) launched a new Website on congenital heart defects (CHD). The new site provides information and resources for individuals, families, health professionals and others about CHD basics, screening, research and tracking, data … Continue reading

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Nick made the Emory Magazine

       

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