Monthly Archives: September 2015

Nick’s New Heart now on ibooks

Nick’s New Heart (AppleID: 978003869) is now available on iBooks. https://itunes.apple.com/us/book/nicks-new-heart/id978003869?ls=1&mt=11

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Another person with CHD living to adulthood

http://news.emory.edu/stories/2015/09/hspub_adults_with_congenital_heart_defects/campus.html

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New Ped Policy

http://optn.transplant.hrsa.gov/governance/public-comment/establish-pediatric-training-and-experience/ I asked you to comment a few months back on a ped policy with United Network for Organ Sharing. It has been reworked some, to the better, I believe. The gest is that if a doctor is going to┬ábe … Continue reading

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Help parents track developmental screenings

  Universal developmental screening is a great way to make sure the 1 in 4 young children at risk for developmental delays or disability are identified and receive the services they need to succeed and thrive alongside their peers. Help … Continue reading

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Transition QuickGuide on health care and career planning

Got Transition has partnered with the Office of Disability Employment (Department of Labor) and the Youth Transitions Collaborative to create a Transition QuickGuide for youth and young adults (ages 12-30), including those with disabilities and chronic health conditions. The QuickGuide … Continue reading

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Introducing a Public Health Framework for Congenital Heart Defects

  The Congenital Heart Public Health Consortium (CHPHC) has developed a frame work that identifies the core components of a public health approach and how those apply to children and adults living with congenital heart defects. Key aspects of the … Continue reading

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