Tag Archives: CHD

World Birth Defects Day: Joining Together Across the Globe for Birth Defects Awareness

Birth defects are common, costly, and critical. Worldwide, approximately 1 in 100 babies are born every year with a major heart defect, while every 1 in 300 births result in a severe heart defect. For the second consecutive year, Congenital … Continue reading

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Bust the Congenital Heart Defect Repair Myth

In the United State, approximately 40,000 babies (1 in 110) per year are born with a congenital heart defect (CHD). Following surgery, the oft-used words of “fixed” or “repaired” lead to the false assumptions. Children with CHD are more likely … Continue reading

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February 7-14 is Congenital Heart Defect Awareness Week

Did you know congenital heart defects (CHDs) affect nearly 1 in 100 births every year in the United States and are the most common type of birth defect? CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) has a number … Continue reading

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Calling all Artists

Raise CHD Awareness – Design a Tie! The American College of Cardiology (ACC) is looking for a new tie design and would like to use this effort to raise awareness for Congenital Heart Disease. As such, the ACC is hosting … Continue reading

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Survival of Children With Hypoplastic Left Heart Syndrome

Results from the recent population-based study (Pediatrics, October 2015) indicate that long-term survival of children with hypoplastic left heart syndrome (HLHS) has improved from 0% for those born 1979-1894 to 52% for those born 1992-2005 who had surgery. This population-based … Continue reading

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Comprehensive Guidebook for Families of Kids with Congenital Heart Defects

Introducing the Mended Little HeartGuide, a Comprehensive Guidebook for Families of Kids with Congenital Heart Defects The digital Mended Little HeartGuide is available. The guide was developed to empower families to feel confident as they care for their child with … Continue reading

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Help parents track developmental screenings

  Universal developmental screening is a great way to make sure the 1 in 4 young children at risk for developmental delays or disability are identified and receive the services they need to succeed and thrive alongside their peers. Help … Continue reading

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Transition QuickGuide on health care and career planning

Got Transition has partnered with the Office of Disability Employment (Department of Labor) and the Youth Transitions Collaborative to create a Transition QuickGuide for youth and young adults (ages 12-30), including those with disabilities and chronic health conditions. The QuickGuide … Continue reading

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Introducing a Public Health Framework for Congenital Heart Defects

  The Congenital Heart Public Health Consortium (CHPHC) has developed a frame work that identifies the core components of a public health approach and how those apply to children and adults living with congenital heart defects. Key aspects of the … Continue reading

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Lifelong care for Adolescents and Adults with a CHD

As people born with congenital heart defects (CHD) age, there are a variety of occurring issues that are not often well understood. These include your emotional and social needs; the benefits of exercise; living long enough to develop new health … Continue reading

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