Tag Archives: CHD

Congenital Heart Defect Awareness Week

February 7-14, 2017 is Congenital Heart Defect Awareness Week! Congenital Heart Defect Awareness Week promotes awareness about congenital heart defects (CHDs). CHDs are the most common birth defect – affecting nearly one in 100 births every year in the United … Continue reading

Posted in Uncategorized | Tagged , , , | Leave a comment

Comments Being Accepted Regarding Candidate Metrics for Young Adults with CHD

The American College of Cardiology’s Adult Congenital and Pediatric Cardiology Section is inviting congenital heart disease community members to comment on two proposed candidate metrics aimed at ensuring young adults with congenital heart disease are appropriately guided into life- long … Continue reading

Posted in Uncategorized | Tagged , , | Leave a comment

CDC: Birth defect-related hospitalization in US cost $23B in 2013

CDC researchers found that the cost of hospitalizations linked to birth defects in the US totaled $22.9 billion or 5.2% of total health care costs in 2013, while representing only 3% of all hospitalizations. The findings were published in the … Continue reading

Posted in Uncategorized | Tagged , , | Leave a comment

Help parents form positive parent-child relationships

“Essentials for Parenting Toddlers and Preschoolers” is a free, online resource developed by the CDC to help parents learn skills that form the foundation of a positive parent-child relationship. Skills focus on encouraging good behavior, while decreasing misbehavior using proven … Continue reading

Posted in Uncategorized | Tagged , , | Leave a comment

Closing the Gaps in Public Health Knowledge About Congenital Heart Defects Across the Lifespan

In the article “Databases for Congenital Heart Public Health Studies Across the Lifespan (JAHA, published online October, 26, 2016), the authors representing the Congenital Heart Public Health Consortium (CHPHC) advocate that anyone planning studies to address public health knowledge gaps … Continue reading

Posted in Uncategorized | Tagged , , , | Leave a comment

New Online Library of Milestones in Action for Parents & Caregivers

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) Learn the Signs. Act Early program just released a new online library of over 250 photos and videos showcasing early childhood developmental milestones from 2 months to 5 years of … Continue reading

Posted in Uncategorized | Tagged , | Leave a comment

Hope as Therapy: How Does Peer Support for Patients Affect Outcomes?

Through the article “Hope as Therapy: How Does Peer Support for Patients Affect Outcomes?” (Cardiovascular Business, October 4, 2016) Mended Hearts Executive Director, Michele Packard-Milam, CAE, discusses the powerful and practical opportunities that peer support models present for injecting hope … Continue reading

Posted in Uncategorized | Tagged , | Leave a comment

AAP Issues Recommendations on Informed Consent in Pediatric Health Care

The American Academy of Pediatrics released a policy statement and technical report in Pediatrics recommending pediatricians use age-appropriate discussions to involve preteen and teen patients in medical decision-making; be familiar with state laws in case of treatment refusals; engage in … Continue reading

Posted in Uncategorized | Tagged , , | Leave a comment

Balancing Parenting and Congenital Heart Disease

A key issue in parenting when you have congenital heart disease (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

Posted in Uncategorized | Tagged , , , , , | Leave a comment

Parenting a Child with CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). The CHPHC offers the message below to all … Continue reading

Posted in Uncategorized | Tagged , , , | Leave a comment