Tag Archives: CHD

Help parents form positive parent-child relationships

“Essentials for Parenting Toddlers and Preschoolers” is a free, online resource developed by the CDC to help parents learn skills that form the foundation of a positive parent-child relationship. Skills focus on encouraging good behavior, while decreasing misbehavior using proven … Continue reading

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Closing the Gaps in Public Health Knowledge About Congenital Heart Defects Across the Lifespan

In the article “Databases for Congenital Heart Public Health Studies Across the Lifespan (JAHA, published online October, 26, 2016), the authors representing the Congenital Heart Public Health Consortium (CHPHC) advocate that anyone planning studies to address public health knowledge gaps … Continue reading

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New Online Library of Milestones in Action for Parents & Caregivers

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) Learn the Signs. Act Early program just released a new online library of over 250 photos and videos showcasing early childhood developmental milestones from 2 months to 5 years of … Continue reading

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Hope as Therapy: How Does Peer Support for Patients Affect Outcomes?

Through the article “Hope as Therapy: How Does Peer Support for Patients Affect Outcomes?” (Cardiovascular Business, October 4, 2016) Mended Hearts Executive Director, Michele Packard-Milam, CAE, discusses the powerful and practical opportunities that peer support models present for injecting hope … Continue reading

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AAP Issues Recommendations on Informed Consent in Pediatric Health Care

The American Academy of Pediatrics released a policy statement and technical report in Pediatrics recommending pediatricians use age-appropriate discussions to involve preteen and teen patients in medical decision-making; be familiar with state laws in case of treatment refusals; engage in … Continue reading

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Balancing Parenting and Congenital Heart Disease

A key issue in parenting when you have congenital heart disease (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

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Parenting a Child with CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). The CHPHC offers the message below to all … Continue reading

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World Birth Defects Day: Joining Together Across the Globe for Birth Defects Awareness

Birth defects are common, costly, and critical. Worldwide, approximately 1 in 100 babies are born every year with a major heart defect, while every 1 in 300 births result in a severe heart defect. For the second consecutive year, Congenital … Continue reading

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Bust the Congenital Heart Defect Repair Myth

In the United State, approximately 40,000 babies (1 in 110) per year are born with a congenital heart defect (CHD). Following surgery, the oft-used words of “fixed” or “repaired” lead to the false assumptions. Children with CHD are more likely … Continue reading

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February 7-14 is Congenital Heart Defect Awareness Week

Did you know congenital heart defects (CHDs) affect nearly 1 in 100 births every year in the United States and are the most common type of birth defect? CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) has a number … Continue reading

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