Tag Archives: CHD

Lifelong care for Adolescents and Adults with a CHD

As people born with congenital heart defects (CHD) age, there are a variety of occurring issues that are not often well understood. These include your emotional and social needs; the benefits of exercise; living long enough to develop new health … Continue reading

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New Research: Use of Special Education Services among Children with Congenital Heart Defects

  New CDC study findings in the August 17 issue of Pediatrics show that children with congenital heart defects (CHDs) received special education services more often than children without birth defects. These findings highlight the need for special education services … Continue reading

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Symposium – Congenital Heart Disease

June 26-27, 2015 (Orlando, FL) In this one-of-a kind national congenital heart disease (CHD) Symposium, parents, caregivers and family members will learn the latest information on caring for their CHD child and new medical treatments to help them as they … Continue reading

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New Affordable Care Act Fact Sheets for Families

Created by the National Center for Medical Home Implementation and the Catalyst Center, these four fact sheets highlight provisions of the Affordable Care Act which benefit children and youth with special health care needs. Each fact sheet is written in … Continue reading

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Pulse Ox Use with Wolf Blitzer

This story aired on the Situation Room with Wolf Blitzer http://situationroom.blogs.cnn.com/2012/07/13/a-test-that-could-save-your-babys-life/?hpt=sr_bn1

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The Congenital Heart Public Health Consortium (CHPHC)

 CHPHC is a group of organizations uniting resources and efforts in public health activities with the mission to prevent the occurrence of congenital heart defects (CHD). The CHPHC also aims to enhance and prolong the lives of those with CHD … Continue reading

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Children’s Heart Foundation Documentary featuring Dr Catherine Webb

“The Heart of the Matter” documentary examines the causes, treatments and legislative action that can be taken to improve care for children and adults living with congenital heart disease (CHD). Families whose children have been diagnosed with CHD and other … Continue reading

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Children’s National Medical Center and Baby’s First Test Release Two Videos on Screening for Critical Congenital Heart Disease (CCHD)

Children’s National Medical Center and Baby’s First Test have released two videos on screening for CCHDs using pulse oximetry in newborns. The videos—produced for parents and clinicians, respectively—were designed to provide information about the test and related processes as CCHD … Continue reading

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New CHD Podcast

A Minute of Health (1 minute summary): http://www2c.cdc.gov/podcasts/player.asp?f=5438171 A Cup of Health (6 minute interview): http://www2c.cdc.gov/podcasts/player.asp?f=5438172

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