Tag Archives: CHD

AAP Issues Recommendations on Informed Consent in Pediatric Health Care

The American Academy of Pediatrics released a policy statement and technical report in Pediatrics recommending pediatricians use age-appropriate discussions to involve preteen and teen patients in medical decision-making; be familiar with state laws in case of treatment refusals; engage in … Continue reading

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Balancing Parenting and Congenital Heart Disease

A key issue in parenting when you have congenital heart disease (CHD) is being able to balance the day-to-day demands of being a parent and living with CHD. Some days it may be hard to figure out who to put … Continue reading

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Parenting a Child with CHD

In honor of Mother’s Day the Congenital Heart Public Health Consortium recognizes the unique joys, sorrows, challenges and opportunities that come to a family with living with a congenital heart defect (CHD). The CHPHC offers the message below to all … Continue reading

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World Birth Defects Day: Joining Together Across the Globe for Birth Defects Awareness

Birth defects are common, costly, and critical. Worldwide, approximately 1 in 100 babies are born every year with a major heart defect, while every 1 in 300 births result in a severe heart defect. For the second consecutive year, Congenital … Continue reading

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Bust the Congenital Heart Defect Repair Myth

In the United State, approximately 40,000 babies (1 in 110) per year are born with a congenital heart defect (CHD). Following surgery, the oft-used words of “fixed” or “repaired” lead to the false assumptions. Children with CHD are more likely … Continue reading

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February 7-14 is Congenital Heart Defect Awareness Week

Did you know congenital heart defects (CHDs) affect nearly 1 in 100 births every year in the United States and are the most common type of birth defect? CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) has a number … Continue reading

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Calling all Artists

Raise CHD Awareness – Design a Tie! The American College of Cardiology (ACC) is looking for a new tie design and would like to use this effort to raise awareness for Congenital Heart Disease. As such, the ACC is hosting … Continue reading

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Survival of Children With Hypoplastic Left Heart Syndrome

Results from the recent population-based study (Pediatrics, October 2015) indicate that long-term survival of children with hypoplastic left heart syndrome (HLHS) has improved from 0% for those born 1979-1894 to 52% for those born 1992-2005 who had surgery. This population-based … Continue reading

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Comprehensive Guidebook for Families of Kids with Congenital Heart Defects

Introducing the Mended Little HeartGuide, a Comprehensive Guidebook for Families of Kids with Congenital Heart Defects The digital Mended Little HeartGuide is available. The guide was developed to empower families to feel confident as they care for their child with … Continue reading

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Help parents track developmental screenings

  Universal developmental screening is a great way to make sure the 1 in 4 young children at risk for developmental delays or disability are identified and receive the services they need to succeed and thrive alongside their peers. Help … Continue reading

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