Tag Archives: Susan May

Comprehensive Guidebook for Families of Kids with Congenital Heart Defects

Introducing the Mended Little HeartGuide, a Comprehensive Guidebook for Families of Kids with Congenital Heart Defects The digital Mended Little HeartGuide is available. The guide was developed to empower families to feel confident as they care for their child with … Continue reading

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Nick’s New Heart now on ibooks

Nick’s New Heart (AppleID: 978003869) is now available on iBooks. https://itunes.apple.com/us/book/nicks-new-heart/id978003869?ls=1&mt=11

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Help parents track developmental screenings

  Universal developmental screening is a great way to make sure the 1 in 4 young children at risk for developmental delays or disability are identified and receive the services they need to succeed and thrive alongside their peers. Help … Continue reading

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Transition QuickGuide on health care and career planning

Got Transition has partnered with the Office of Disability Employment (Department of Labor) and the Youth Transitions Collaborative to create a Transition QuickGuide for youth and young adults (ages 12-30), including those with disabilities and chronic health conditions. The QuickGuide … Continue reading

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Introducing a Public Health Framework for Congenital Heart Defects

  The Congenital Heart Public Health Consortium (CHPHC) has developed a frame work that identifies the core components of a public health approach and how those apply to children and adults living with congenital heart defects. Key aspects of the … Continue reading

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Lifelong care for Adolescents and Adults with a CHD

As people born with congenital heart defects (CHD) age, there are a variety of occurring issues that are not often well understood. These include your emotional and social needs; the benefits of exercise; living long enough to develop new health … Continue reading

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New Research: Use of Special Education Services among Children with Congenital Heart Defects

  New CDC study findings in the August 17 issue of Pediatrics show that children with congenital heart defects (CHDs) received special education services more often than children without birth defects. These findings highlight the need for special education services … Continue reading

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My Mother’s Day Gift

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Symposium – Congenital Heart Disease

June 26-27, 2015 (Orlando, FL) In this one-of-a kind national congenital heart disease (CHD) Symposium, parents, caregivers and family members will learn the latest information on caring for their CHD child and new medical treatments to help them as they … Continue reading

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Report on congenital heart surgery outcomes is made available to public

  The Society of Thoracic Surgeons has made public its first report of pediatric and congenital heart surgery outcomes from the Congenital Heart Surgery Database. The report included four-year observed, expected and risk-adjusted center-level surgery-related mortality rates for the aggregate … Continue reading

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